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Online-Infoveranstaltung zum Thema Duchenne am 20. Juli 2023

Katrin Schwabe-Fleitmann

Katrin Schwabe-Fleitmann

18.07.2023

0

1 Min. Lesezeit

Die Deutsche Gesellschaft für Muskelkranke (DGM) lädt am 20. Juli 2023 von 17.30 bis 18.30 Uhr zu einer virtuellen Informationsveranstaltung zum Thema Duchenne-Muskeldystrophie ein. Referent ist der Ärztliche Direktor der Klinik für Neuropädiatrie und Muskelerkrankungen Freiburg, Professor Janbernd Kirschner. Wer Interesse hat, sollte sich mit einer kurzen Mail unter info@dgm.org anmelden.

© Ilona Savchuk

Die Duchenne-Muskeldystrophie (DMD) ist die häufigste muskuläre Erbkrankheit im Kindesalter. Betroffen sind hauptsächlich Jungen. Der fortschreitende Muskelabbau kann nur durch eine rechtzeitige Therapie verlangsamt werden. Erst kürzlich hat die US-amerikanische Arzneimittelbehörde FDA eine genbasierte Therapie zugelassen. Ihre Wirksamkeit wurde aber noch nicht eindeutig in Studien bestätigt. Weitere Informationen zum Thema Duchenne gibt es auch in der August-Ausgabe von up.

Tags: Muskel-Skelett-Erkrankungen, neurologische Erkrankungen, Neuromuskuläre Erkrankungen, Veranstaltung

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03. 03. 2023

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Deutscher Schmerz- und Palliativtag auch 2023 wieder online

13. 02. 2023

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Online-Veranstaltung zum Thema Schlaganfall bei Kindern am 6. Oktober

13. 09. 2021

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Neue Online-Veranstaltungsreihe „Auf den Punkt!“ startet am 22. Juli

02. 07. 2021

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